Sooke steps up to help sick boy

Upcoming events include a candy sale, a benefit concert, a family carnival and a dance

The Sooke community is going above and beyond to support Landen Alexa, a local child struggling with a rare form of arthritis.

“I kind of had to take a step back with fundraising because of how busy I’ve been with school and Landen,” said Jillian Lanthier, Landen’s mother. “So to see the community come together to help us like this, I am speechless. I love Sooke as a community, and I have no plans of ever leaving.”

Love for Landen Day is planned for Feb. 10 in Sooke and candy bags will be sold outside Shoppers Drug Mart, Village Foods and at several other Sooke businesses for $2 each to raise money for Landen.

Another event coming up is a Boz Roz–Remember John Lennon benefit concert on Feb. 16 starting at 8 p.m. at the Holy Trinity Anglican Church in Sooke. Tickets cost $20 and will be available at the door the night of the show; all proceeds will go to Landen.

RELATED: Six-year-old Sooke boy needs $19,000 a month to treat rare form of arthritis

Last June, Landen was diagnosed with systemic juvenile idiopathic arthritis , or SJIA, a disease that causes his body to attack itself, leaving him with crippling muscle and joint pain and with virtually no immune system.

Landen’s medicine is no longer working effectively, and the only option for treatment Ilarus, a drug that costs $19,000 a month, and is not covered by B.C. Pharmacare.

Lanthier, said since being denied help with payments from the government, she is first aiming to try and raise $57,000, enough for three months of treatment.

So far, through a Go Fund Me page, Lanthier has raised more than $15,000.

One of the biggest upcoming fundraisers planned is a family carnival and concert on March 3 at the Sooke Community Hall. The carnival, which will include a D.J., games, bouncy castles, a magician and a photo booth, runs from 10 a.m. to 5 p.m. Admission is by donation.

The adult concert and dance, featuring the band SuperSauce, will begin at 8:30. Tickets can be bought in advance at Stick in the Mud Coffeehouse or at Shoppers Drug Mart for $10, or for $15 at the door.

Marg Ayres, organizer of the event, said she was amazed and very thankful for how much Sooke has already contributed towards the event.

“We are looking forward to coming out and meeting people at the events, and thanking people for what they’ve done for us,” said Lanthier.

Axe and Barrel and Mr. Mikes in Langford are both planning on hosting “beer and burger” nights to raise money, and there is also an ongoing bottle drive happening for Landen. Bottles can be donated at the Sooke Bottle Depot.

“They say it takes a village to raise a child, and I seriously have that right now. That village for me is Sooke, and I don’t know how to express how grateful I am,” Lanthier said.

To donate to the event on March 3, contact Marg Ayres at marg@timayres.ca.

Just Posted

Tour de Victoria rolls through the region Saturday

Expect traffic delays across Greater Victoria on Aug. 18

Fire chief stops driving lesson to fight fire

Sooke fire concerned over second suspicious bin fire this year

Victoria police seize over one kilo of fentanyl, guns and cars

Andrew Ritch is facing charges of drug trafficking and firearm offences

UPDATE: Missing Langford teen found safe

The 13-year-old Langford boy reported missing Wednesday has been found

Six Victoria firefighters head to B.C. Interior to combat wildfires

The Victoria Fire Department sent a water tender and fire truck to Fort St. James

B.C. wildfires 2018: Hazy skies impacting crews in spotting new fires

18,000 people are on an evacuation alert, with 3,000 homes under an evacuation order

Minister optimistic after 2 days of Columbia River Treaty negotiations

Canadian and U.S. officials met in Nelson Wednesday and Thursday to discuss future of the treaty

Man dies in B.C. police cell while awaiting court hearing

An independent investigation is underway after a man died while in Penticton police custody Aug. 16

RCMP appeal for tips, dashcam footage in German tourist shooting west of Calgary

The Durango crashed into the ditch after the shooting near the Goodstoney Rodeo Centre

2 nurses attacked at B.C. psych hospital, union calls for in-unit security

PHSA says that in-unit guards would do more harm than good

Former B.C. optician won’t be jailed for sexually assaulting minor

Kenneth Pilkington sentenced to 24 months’ probation for offence three decades ago

Red Cross now accepting donations for those impacted by B.C. wildfires

The Canadian Red Cross is asking for help now and in the weeks and months ahead.

B.C. program to educate parents reduces ‘shaken baby syndrome’ by 35%

Period of PURPLE Crying was launched nearly a decade ago

Most Read