The parents of 12-year-old Halle Krawczyk of Salmon Arm received welcome news on Dec. 7, 2020 that the Medical Services Plan has reversed its decision and would fund her surgery in the United States for a rare cancer. However, the family is told they are still faced with at least $150,000 in additional expenses to be incurred during the six months in the U.S. throughout the surgery and recovery. (Contributed)

The parents of 12-year-old Halle Krawczyk of Salmon Arm received welcome news on Dec. 7, 2020 that the Medical Services Plan has reversed its decision and would fund her surgery in the United States for a rare cancer. However, the family is told they are still faced with at least $150,000 in additional expenses to be incurred during the six months in the U.S. throughout the surgery and recovery. (Contributed)

MSP to fund Salmon Arm girl’s surgery to combat rare cancer after reversing decision

Medical Services Plan reverses decision to not help with U.S. cost, parents still face $150,000 bill

Having a child diagnosed with cancer is an emotional roller coaster at best, but the Krawczyk family has just reached an unexpected high.

Monday afternoon, Dec. 7, 12-year-old Halle Krawczyk’s Vancouver oncologist informed the family that the Medical Services Plan (MSP) has reversed its decision to not fund Halle’s surgeries for ‘poorly differentiated chordoma,’ a rare and deadly cancer that affects one in 20 million people.

Although Carolyn and Matt initially expected the three required operations with a world-renowned surgeon in Pittsburgh would be more than $100,000, they learned Dec. 4 that the surgeries would actually cost a minimum of $325,000 Cdn.

With associated bills in Canada while not being able to work, along with hotel accommodation, transportation, medical insurance and more during the six months in the U.S., the family was looking at a total cost of at least $500,000.

They are thrilled with the news.

Although the Krawczyks are still left with at least $150,000 in immediate expenses following the MSP’s change of heart, Carolyn and Matt’s first concern was about those people who have been or will be donating money.

“We do not want anyone to be misled in their giving!” Carolyn wrote in an email to the Observer as soon as she received the news.

Read more: Salmon Arm parents raise funds for surgery to combat daughter’s rare cancer

Read more: UPDATE: Surgery, related costs increase fundraising goal for Salmon Arm girl

Read more: 2018 – Update: Drug for young Shuswap girl with cancer to be made available

Leading up to this, the family had been told that the doctor and his team in Pittsburgh are best qualified to perform the rare pediatric surgery. However, MSP had told them that the surgery can’t be funded because the Canadian policy is that if a doctor in Canada can do the surgery, then it won’t be covered in the United States, Carolyn said.

Although that might be a good policy for some surgeries, this one is different, she had said, noting that Canada just doesn’t have the experience. The U.S. sees many more cases of chordoma, with just five per cent of them pediatric. Halle’s form of chordoma is even more rare.

As well as two surgeries removing the rapidly growing tumours on two upper vertebrae and on the clivus behind her nose, she must also have a spinal fusion. Proton beam radiation following the three needed operations could then prolong her life indefinitely.

“We’ve got one chance, we don’t want to mess it up,” Carolyn said.

She explained that she and Matt have been focusing so hard on advocating for the surgery for Halle that tallying all the additional upcoming costs has been secondary.

“We’ve been in total fight mode to just try to get Halle help that we haven’t been able to focus on all the things we need to. Hopefully we can do that now.”

Right now, gratitude is the prevailing emotion: “The great news is we know Halle gets her best shot at beating this!!!”


marthawickett@saobserver.net
Like us on Facebook and follow us on Twitter

CancerSalmon Arm

Just Posted

Shaelyn Sinnott of Oak Bay Volunteer Services delivers groceries for client Irene Kenny. The organization has kept up delivery of food and medication throughout all phases of the COVID-19 pandemic. (Courtesy Oak Bay Volunteer Services)
Oak Bay volunteers keep critical services running

Duo drove between Oak Bay and Jubilee three days a week, twice a day during pandemic

Willows Beach in Oak Bay. (Black Press Media file photo)
Seven days of sun set to shine on Greater Victoria

Special weather statement warns of higher than usual temperatures

Chef Trevor Randle leads a June 21 online cooking featuring recipes – beef zesty lettuce wraps, blueberry strudel and blueberry spritzer. (Courtesy We Heart Local BC)
Free online cooking course explores B.C. blueberries and beef

Chef Trevor Randle calls them the province’s most flavourful foods

Google Maps shows significant traffic backups after a crash reported shortly before noon on Father’s Day, June 20. (Google Maps)
Father’s Day crash in Saanich closes lane of McKenzie Avenue

Police say there were injuries, traffic impacted

Hot rods, rad rods, muscle and sports cars spanning the decades made their way in a parade from North Saanich to Victoria on June 19. (Kiernan Green/News Staff)
PHOTOS: Classic cars cruise Saanich Peninsula in advance of Father’s Day

Retirement home residents from North Saanich to Victoria treated to a spectacle of hot rides

Jesse Roper tackles weeds in his garden to kick off the 2021 season of What’s In My Garden Man? (YouTube/Whats In My Garden)
VIDEO: Metchosin singer-songwriter Jesse Roper invites gardeners into his plot

What’s In My Garden, Man? kicks off with the poop on compost

Blair Lebsack, owner of RGE RD restaurant, poses for a portrait in the dining room, in Edmonton, Friday, June 18, 2021. Canadian restaurants are having to find ways to deal with the rising cost of food. THE CANADIAN PRESS/Jason Franson
Canadian restaurateurs grapple with rising food costs, menu prices expected to rise

Restaurants are a low margin industry, so there’s not a lot of room to work in additional costs

RCMP crest. (Black Press Media files)
Fort St. John man arrested after allegedly inviting sexual touching from children

Two children reported the incident to a trusted adult right away

A Lotto 6/49 ticket purchased in Parksville for the June 19, 2021 draw is a $3M winner. (Submitted photo)
Winning Lotto 6/49 ticket worth $3M purchased on Vancouver Island

Lottery prize winners have 52 weeks to claim jackpot

This undated file photo provided by Ernie Carswell & Partners shows the home featured in the opening and closing scenes of The Brady Bunch in Los Angeles. Do you know the occupation of Mike Brady, the father in this show about a blended family? (Anthony Barcelo/Ernie Carswell & Partners via AP, File)
QUIZ: A celebration of dad on Father’s Day

How much do you know about famous fathers?

Cpl. Scott MacLeod and Police Service Dog Jago. Jago was killed in the line of duty on Thursday, June 17. (RCMP)
Abbotsford police, RCMP grieve 4-year-old service dog killed in line of duty

Jago killed by armed suspect during ‘high-risk’ incident in Alberta

Patrick O’Brien, a 75-year-old fisherman, went missing near Port Angeles Thursday evening. (Courtesy of U.S. Coast Guard)
Search for lost fisherman near Victoria suspended, U.S. Coast Guard says

The 75-year-old man was reported missing Thursday evening

Barbara Violo, pharmacist and owner of The Junction Chemist Pharmacy, draws up a dose behind vials of both Pfizer-BioNTech and Oxford-AstraZeneca COVID-19 vaccines on the counter, in Toronto, Friday, June 18, 2021. An independent vaccine tracker website founded by a University of Saskatchewan student says just over 20 per cent of eligible Canadians — those 12 years old and above — are now fully vaccinated. THE CANADIAN PRESS/Nathan Denette
At least 20% of eligible Canadians fully vaccinated, 75% with one dose: data

Earlier projections for reopening at this milestone didn’t include Delta variant

Emily Steele holds up a collage of her son, 16-year-old Elijah-Iain Beauregard who was stabbed and killed in June 2019, outside of Kelowna Law Courts on June 18. (Aaron Hemens/Capital News)
Kelowna woman who fatally stabbed teen facing up to 1.5 years of jail time

Her jail sentence would be followed by an additional one to 1.5 years of supervision

Most Read