Jill Daum, at the Belfry theatre in Victoria. (Jonathan Hayward/The Canadian Press)

Alzheimer’s story from wife of Spirit of the West singer takes stage

Jill Daum, wife of musician John Mann, writes ‘Forget About Tomorrow’, playing now in Victoria

Jill Daum says writing a play about a family’s struggles with Alzheimer’s helped her get out of bed some days as she fought to accept her husband’s diagnosis of the cruel disease.

Daum is married to musician John Mann, the driving force behind the Canadian band Spirit of the West, who was diagnosed with early-onset Alzheimer’s almost six years ago and now, at age 55, lives in a care home.

“Forget About Tomorrow” opened Jan. 25 at Victoria’s Belfry Theatre and is scheduled to run until Feb. 18. It is also scheduled to start March 1 at Vancouver’s Arts Club Theatre.

“The story is fictional but it was certainly inspired by what I learned from living with John. What I learned as a caregiver and what I’ve had to watch him go through,” said Daum in an interview hours before the opening night performance.

READ MORE: Making music, with John Mann

READ MORE: John Mann shows indomitable spirit in new documentary

She said Alzheimer’s takes its toll on more than just the individual with the disease. It ransacks families and the play explores the decline of a family and couple as the disease slowly gnaws at long-standing bonds, she said.

“It’s about the wife who’s married to the person who gets the diagnosis and how it affects her and her family, and her path to accepting what her life will be,” Daum said. “She goes down a few rabbit holes … and eventually comes to a place of acceptance.”

Daum, who was rewriting lines right up until opening night, said the play evolved during sessions at a women’s writing workshop in Vancouver. She said she didn’t tell anybody about her husband’s diagnosis and the foundation of the play emerged during those gatherings.

“I started to write scenes about a woman whose husband had early-onset and nobody in the group knew John had it,” said Daum. “They were really impressed with my knowledge about the disease. I got to talk about what it was like for a caregiver. I got to do all of that without anybody knowing it was actually about me.”

“Forget About Tomorrow” is Daum’s first solo project, though she has collaborated on other plays.

She said Mann is not able to attend the Victoria performances.

“We’ve just gone through a really rough patch with him. But he’s still beautiful Johnny. He’s still snapping his fingers. There’s a lot of love for John in this show.”

She said Mann often helped her read lines in the scenes and he contributed two songs to the play.

The songs, “Forget to Forget,” and “Tom’s Song,” are the last songs Mann has written. The play opens and closes with the songs.

Daum said the play is an emotional roller-coaster, humorous and moving, as the family attempts to cope with upheaval in their lives. The performance arrives at a crossroad, where actor Jennifer Lines, who portrays the wife and caregiver, meets a new man and confronts a difficult decision.

“The dilemma is should Jane take it or stay with her husband when we all know in two years he won’t remember her name,” she said.

Daum said her personal road to acceptance of Alzheimer’s has been difficult, especially since the journey is continuing to its ultimate end.

“I will have a life past Alzheimer’s and John won’t. It’s hard for everybody,” Daum said.

Dirk Meissner, The Canadian Press

Just Posted

Pedestrain struck on Quadra Street

A pedestrian was struck by a vehicle on Quadra Street at Hulford… Continue reading

Our Place celebrates Christmas in July

Afternoon barbecue serves up turkey burgers and Santa hats under the hot sun

Affordable housing idea dead for Central Park, idea shifts to Royal Athletic Park lot

Underground parking with housing units above to be considered for existing lot

Police respond after dog left in vehicle at the movies

West Shore RCMP determined the animal was not in distress

VIDEO: Trudeau shuffles familiar faces, adds new ones to expanded cabinet

Justin Trudeau shuffles his front bench Wednesday to install the roster of ministers that will be entrusted with leading the Liberal team into next year’s election.

‘Amazing Race Canada’ competitors face B.C. challenge

They drove Corvettes, mastered falconry basics, and ate blueberry pie in the Cowichan Valley

Grizzly bear jumps in river, chases B.C. kayaker

The bear got a bit too close for comfort along the Elaho River near Squamish

Island man convicted of 1999 sex assault at Fraser Valley music festival

James Allen Redden, formerly of Nanaimo, was found guilty of three charges

Parks Canada looks to shine light on cloudy future for historic sites

A plan is in place to produce 10-year plans designed to turn around sagging attendance figures

B.C. poet shines a bright light on struggle with homelessness

Book launch for John La Greca’s Homeless Memorial is at Vernon’s Gallery Vertigo July 21.

Former Vike returns to lead women’s rowing program

Williams rowed for UVic, Oxford and Canada

Ontario police say attack on Muslim man was motivated by hate

Two men, aged 27 and 19, have been charged with assault in the incident

Most Read